Shared Purpose and Good Clinical Data Management Practice Kit (Publication Date: 2024/03)

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Discover Insights, Make Informed Decisions, and Stay Ahead of the Curve:



  • What general practice data should be shared, with whom and for what purposes?


  • Key Features:


    • Comprehensive set of 1539 prioritized Shared Purpose requirements.
    • Extensive coverage of 139 Shared Purpose topic scopes.
    • In-depth analysis of 139 Shared Purpose step-by-step solutions, benefits, BHAGs.
    • Detailed examination of 139 Shared Purpose case studies and use cases.

    • Digital download upon purchase.
    • Enjoy lifetime document updates included with your purchase.
    • Benefit from a fully editable and customizable Excel format.
    • Trusted and utilized by over 10,000 organizations.

    • Covering: Quality Assurance, Data Management Auditing, Metadata Standards, Data Security, Data Analytics, Data Management System, Risk Based Monitoring, Data Integration Plan, Data Standards, Data Management SOP, Data Entry Audit Trail, Real Time Data Access, Query Management, Compliance Management, Data Cleaning SOP, Data Standardization, Data Analysis Plan, Data Governance, Data Mining Tools, Data Management Training, External Data Integration, Data Transfer Agreement, End Of Life Management, Electronic Source Data, Monitoring Visit, Risk Assessment, Validation Plan, Research Activities, Data Integrity Checks, Lab Data Management, Data Documentation, Informed Consent, Disclosure Tracking, Data Analysis, Data Flow, Data Extraction, Shared Purpose, Data Discrepancies, Data Consistency Plan, Safety Reporting, Query Resolution, Data Privacy, Data Traceability, Double Data Entry, Health Records, Data Collection Plan, Data Governance Plan, Data Cleaning Plan, External Data Management, Data Transfer, Data Storage Plan, Data Handling, Patient Reported Outcomes, Data Entry Clean Up, Secure Data Exchange, Data Storage Policy, Site Monitoring, Metadata Repository, Data Review Checklist, Source Data Toolkit, Data Review Meetings, Data Handling Plan, Statistical Programming, Data Tracking, Data Collection, Electronic Signatures, Electronic Data Transmission, Data Management Team, Data Dictionary, Data Retention, Remote Data Entry, Worker Management, Data Quality Control, Data Collection Manual, Data Reconciliation Procedure, Trend Analysis, Rapid Adaptation, Data Transfer Plan, Data Storage, Data Management Plan, Centralized Monitoring, Data Entry, Database User Access, Data Evaluation Plan, Good Clinical Data Management Practice, Data Backup Plan, Data Flow Diagram, Car Sharing, Data Audit, Data Export Plan, Data Anonymization, Data Validation, Audit Trails, Data Capture Tool, Data Sharing Agreement, Electronic Data Capture, Data Validation Plan, Metadata Governance, Data Quality, Data Archiving, Clinical Data Entry, Trial Master File, Statistical Analysis Plan, Data Reviews, Medical Coding, Data Re Identification, Data Monitoring, Data Review Plan, Data Transfer Validation, Data Source Tracking, Data Reconciliation Plan, Data Reconciliation, Data Entry Specifications, Pharmacovigilance Management, Data Verification, Data Integration, Data Monitoring Process, Manual Data Entry, It Like, Data Access, Data Export, Data Scrubbing, Data Management Tools, Case Report Forms, Source Data Verification, Data Transfer Procedures, Data Encryption, Data Cleaning, Regulatory Compliance, Data Breaches, Data Mining, Consent Tracking, Data Backup, Blind Reviewing, Clinical Data Management Process, Metadata Management, Missing Data Management, Data Import, Data De Identification




    Shared Purpose Assessment Dataset - Utilization, Solutions, Advantages, BHAG (Big Hairy Audacious Goal):


    Shared Purpose

    Shared purpose involves determining what data from general practices should be shared, with whom it should be shared, and for what specific purposes. This allows for better collaboration and decision-making among different parties involved in healthcare.


    1. Establish clear data sharing protocols with partners to ensure proper usage and safeguarding of data.
    2. Develop a consent process to obtain permission from study participants for data sharing.
    3. Determine the level of de-identification needed to ensure participant anonymity.
    4. Share data only with authorized individuals and entities to maintain confidentiality.
    5. Utilize secure technology platforms, such as encrypted servers, for sharing sensitive data.
    6. Continuously monitor data sharing to ensure compliance with regulations and ethical guidelines.
    7. Facilitate communication between parties to clarify data usage and resolve any concerns.
    8. Promote transparency by clearly stating the goals and objectives of data sharing.
    9. Establish data governance policies to govern data sharing activities.
    10. Encourage collaboration between researchers to foster advancements in medical knowledge.

    CONTROL QUESTION: What general practice data should be shared, with whom and for what purposes?


    Big Hairy Audacious Goal (BHAG) for 10 years from now:
    By 2030, the global standard for general practice data sharing should be comprehensive and inclusive, encompassing all patient data relevant to their overall health and well-being. This data should be shared securely and ethically with healthcare providers, researchers, and public health agencies, with the ultimate goal of improving individual and population health outcomes.

    This data sharing should go beyond just medical information, to also include social determinants of health, such as environmental and socioeconomic factors. This will allow for a more holistic understanding of patients′ health needs and enable targeted interventions to improve overall health and well-being.

    Additionally, patient consent mechanisms for data sharing should be transparent and easily accessible, while also respecting patients′ right to privacy. Robust data governance and security measures should be in place to ensure the confidentiality of sensitive information.

    The shared purpose of this data sharing should be centered around promoting health equity and reducing health disparities globally. By leveraging the power of shared data, we can better understand the root causes of health inequities and work towards creating more equitable healthcare systems and policies.

    Overall, the goal for general practice data sharing should be to facilitate collaboration and innovation in healthcare, ultimately leading to improved health outcomes for all individuals and communities.

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    Shared Purpose Case Study/Use Case example - How to use:



    Case Study: Shared Purpose - Sharing General Practice Data for Improved Healthcare Outcomes

    Synopsis of Client Situation
    Shared Purpose is a healthcare organization with a mission to improve the quality and effectiveness of care by promoting collaborative efforts among different healthcare providers. The organization serves as a central hub for sharing data and best practices among its member organizations, including hospitals, clinics, and private practices. However, as the organization continues to expand and enhance its services, there is a growing need for clear guidelines on what general practice data should be shared, with whom, and for what specific purposes.

    Consulting Methodology
    In order to address this issue, Shared Purpose engaged a team of consultants from McKinsey & Company, a global management consulting firm known for its expertise in the healthcare industry. The consulting methodology used for this project involved a three-phase approach:

    1. Research and Analysis: The consultants conducted extensive research on the current state of general practice data sharing in the healthcare industry. This included reviewing existing literature and whitepapers on healthcare data sharing, as well as conducting interviews and focus groups with key stakeholders such as healthcare providers, patients, and regulatory bodies.

    2. Data Collection and Processing: Based on the findings from the research phase, the consultants developed a comprehensive list of general practice data that should be shared among healthcare providers. This included both clinical and administrative data, such as patient demographics, medical history, diagnosis and treatment information, and financial data. The data was then categorized based on its level of sensitivity and potential impact on patient care.

    3. Recommendations and Implementation: The final phase involved developing a set of recommendations for Shared Purpose to guide their members on what general practice data should be shared, with whom, and for what purposes. These recommendations were based on the data categorization, benchmarking against industry best practices, and consideration of potential ethical and legal implications. The consultants also provided a roadmap for implementation, including communication strategies, training programs, and KPIs to measure the success of the new data sharing guidelines.

    Deliverables
    The consulting team delivered the following key deliverables to Shared Purpose:

    1. A comprehensive list of general practice data that should be shared among healthcare providers, categorized based on sensitivity and potential impact on patient care.
    2. A set of recommendations for sharing of data, including guidelines for data access, security, and governance.
    3. A roadmap for implementation, including communication strategies, training programs, and KPIs to measure the success of the new data sharing guidelines.
    4. A data sharing agreement template for member organizations to use when sharing data with other providers.

    Implementation Challenges
    The consulting team faced several challenges during the implementation phase, namely resistance from healthcare providers who were hesitant to share their data due to concerns about patient privacy and competitive advantage. To address this issue, the team worked closely with Shared Purpose to develop a robust communication and training program to educate its members about the benefits of data sharing and how it can improve patient care outcomes. The team also collaborated with legal experts to ensure that all recommendations and guidelines were compliant with relevant data privacy laws and regulations.

    KPIs and Other Management Considerations
    To measure the success of the new data sharing guidelines, the consulting team established the following KPIs:

    1. Increase in the percentage of general practice data shared among member organizations.
    2. Improvement in the speed and accuracy of diagnosis and treatment due to better access to patient data.
    3. Reduction in duplicate tests and treatments as a result of improved data sharing and coordination among providers.
    4. Increase in patient satisfaction scores.

    Other management considerations included ongoing monitoring and evaluation of data sharing practices, continuous improvement and refinement of the guidelines, and regular communication and collaboration with member organizations to address any challenges that may arise.

    Conclusion
    In conclusion, through the consulting intervention of McKinsey & Company, Shared Purpose was able to develop clear guidelines for what general practice data should be shared, with whom, and for what purposes. By promoting a collaborative approach to data sharing, Shared Purpose has the opportunity to improve healthcare outcomes and drive efficiencies in the provision of care. This case study highlights the important role that data sharing can play in the healthcare industry, and the need for organizations to carefully consider what data should be shared and how in order to balance patient privacy with the benefits of improved coordination and collaboration among providers.

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